What is Patient and Public Involvement?

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Patient and Public involvement (or PPI as it is shortened to), is important in clinical research. This means that research is done ‘with’ or ‘by’ the public, not ‘to’, ‘about’ or ‘for’ them.

It means that patients or other people with relevant experience have contributed to how research is designed, carried out, and the sharing of research information with the public. It is also vital that researchers listen to, and act on the feedback of research participants.

Male patient completing form
Nurse placing blood pressure cuff on arm of a young smiling female patient

UK Standards For Public Involvement is a national framework of what good public involvement looks like, such as flexibility, sharing and learning and respect for each other. 

No matter what your background is, whether you are experienced as a patient or research participant or this is your first step into health research, you can help to shape the work of the NIHR Cambridge Clinical Research Facility (CRF).

With your help we will work to understand and, where necessary, improve the patient experience at the CRF, including:

  • Listening and improving from feedback our participant experience surveys.
  • Making sure that we produce information that is easy to understand
  • Embedding patient perspective within our organisational structure
  • Ensuring that we communicate through the correct methods to our patients and the wider public
Man in a white coat holding samples by a laboratory machine

To find out more, email: cuh.ppi.crf@nhs.net

Research Champions are patients, carers, members of the public, people who have taken part in a research study before, as well as those who haven’t. Research Champions are getting more people involved in research so that we can develop better care and treatment for everyone.

To find out about different NIHR Research Champion roles Research Champions | NIHR