What is Patient and Public Involvement?
Patient and Public involvement (or PPI as it is shortened to), is important in clinical research. This means that research is done ‘with’ or ‘by’ the public, not ‘to’, ‘about’ or ‘for’ them.
It means that patients or other people with relevant experience have contributed to how research is designed, carried out, and the sharing of research information with the public. It is also vital that researchers listen to, and act on the feedback of research participants.
We are in the process of developing our 2022-2027 strategy for effectively engaging and involving patients and members of the public in the NIHR Cambridge CRF (Publication date: summer 2023)
UK Standards For Public Involvement is a national framework of what good public involvement looks like, such as flexibility, sharing and learning and respect for each other.
No matter what your background is, whether you are experienced as a patient or research participant or this is your first step into health research, you can help to shape the work of the NIHR Cambridge Clinical Research Facility (CRF).
With your help we will work to understand and, where necessary, improve the patient experience at the CRF, including:
- Listening and improving from feedback our participant experience surveys.
- Making sure that we produce information that is easy to understand
- Embedding patient perspective within our organisational structure
- Ensuring that we communicate through the correct methods to our patients and the wider public
To find out more, email: cuh.ppi.crf@nhs.net
Research Champions are patients, carers, members of the public, people who have taken part in a research study before, as well as those who haven’t. Research Champions are getting more people involved in research so that we can develop better care and treatment for everyone.
To find out about different NIHR Research Champion roles Research Champions | NIHR
Cambridge Clinical Research Facility (CRF) is the largest, single site NIHR CRF, in the heart of Cambridge Biomedical Campus. It is the largest centre of medical research and health science in Europe.
